Events

Tuesday, June 4, 2019

Informal Our Odyssey Get Together | Philadelphia, PA

5:30pm - 7:30pm

Chapterhouse Café & Gallery : 620 South 9th Street, Philadelphia, PA 19147

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Tuesday, June 4, 2019

Informal Our Odyssey Get Together | Philadelphia, PA

We are thrilled for the opportunity to connect with other young adults in the Philly area during BIO 2019. We will be there to meet you where you are and answer questions you may have about Our Odyssey. Let us know if we can expect you!

5:30pm - 7:30pm

Chapterhouse Café & Gallery : 620 South 9th Street, Philadelphia, PA 19147

Sunday, September 8, 2019

DC Meet-Up

2:00pm - 4:00pm

Smith Center 1632 U St NW Washington, DC

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Sunday, September 8, 2019

DC Meet-Up

As a young adult, do you feel like your health needs are often overlooked by the health community? Come meet, network, and connect with other young adults who are facing similar challenges. Whether it's dating, family planning, coping with the "new" normal, transitioning to your next step in education or a career, or other topics that young adults face, you're not alone. To quote the great movie of our generation, High School Musical, we are in this together!


Snacks and drinks will be provided. We hope you attend and meet some of your fellow young adult advocates in the rare and chronic communities.


Register today! 

2:00pm - 4:00pm

Smith Center 1632 U St NW Washington, DC

Friday, September 20, 2019

Global Genes Summit Meet-Up

11:30am - 1:00pm

1380 Harbor Island Drive, San Diego, California, United States of America

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Friday, September 20, 2019

Global Genes Summit Meet-Up

As the largest gathering of rare disease patients, caregivers, thought leaders and other rare disease stakeholders in the world, the RARE Patient Advocacy Summit is an unparalleled opportunity to forge meaningful connections with other rare advocates and take home actionable strategies and tools to accelerate change.


Come join us during day two lunch as we meet, network, and connect with other young adults impacted by a rare or chronic condition.

11:30am - 1:00pm

1380 Harbor Island Drive, San Diego, California, United States of America

Thursday, October 3, 2019

Patient Summit USA: Philly Meet-Up

TBD

Philadelphia, PA

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Thursday, October 3, 2019

Patient Summit USA: Philly Meet-Up

Seth & Kristina will be speaking at this year's #patientsummit in Philly and we are also excited to host our second young adult meet-up, following the event.

TBD

Philadelphia, PA

Monday, October 21, 2019-Tuesday, October 22, 2019

NORD Summit

7:00am - 6:15pm

Marriott Wardman Park 2660 Woodley Rd. NW Washington, D.C. 20008

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Monday, October 21, 2019-Tuesday, October 22, 2019

NORD Summit

As technology in rare disease accelerates, and with topics like drug pricing being a top priority in government, we must act now to drive innovation and collaboration to develop stronger resources, better outcomes and find cures for the community. In 2019, we believe The Time is Now to prioritize action in making positive changes for the millions of Americans living with rare diseases.

7:00am - 6:15pm

Marriott Wardman Park 2660 Woodley Rd. NW Washington, D.C. 20008

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