Our Odyssey is a nonprofit organization designed to provide support for young adults living with rare and chronic diseases. Listen to learn more from the founders Seth, Kristina, and Anna. during that journey.
Seth and Kristina share how they both have felt the isolation of entering adulthood in the shadow of rare and chronic disease. In this episode, they discuss why they started Our Odyssey and the set of unmet needs facing young adults in the rare and chronic communities.
This is CoRDS Cast, a rare disease podcast created by the team at Sanford Research. Our rare disease registry, CoRDS, connects patients and researchers everywhere. Here, you'll hear interviews with patients, patient advocates, physicians, and researchers to raise awareness about the 7,000 rare conditions affecting 1 in 10 people worldwide.
Help 4 HD Live! is the ﬁrst international radio program ever created for the Huntington's disease community. In this episode, Seth discusses Our Odyssey and how it all started.
"There's more to life than circumstance."
Kyle Bryant & Sean Baumstark speak life into living beyond our circumstances with authenticity & humor. They are both affected by a rare disease called Friedreich's Ataxia (FA), which significantly impacts their balance and coordination.