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Creating Community for Young Adults with Rare and Chronic Disease

Our Odyssey is a nonprofit organization designed to provide support for young adults living with rare and chronic diseases. Listen to learn more from the founders Seth, Kristina, and Anna. during that journey. 

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Connecting Young Adults with Rare and Chronic Conditions

Seth and Kristina share how they both have felt the isolation of entering adulthood in the shadow of rare and chronic disease. In this episode, they discuss why they started Our Odyssey  and the set of unmet needs facing young adults in the rare and chronic communities.

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An episode of CoRDS Cast

This is CoRDS Cast, a rare disease podcast created by the team at Sanford Research. Our rare disease registry, CoRDS, connects patients and researchers everywhere. Here, you'll hear interviews with patients, patient advocates, physicians, and researchers to raise awareness about the 7,000 rare conditions affecting 1 in 10 people worldwide.

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Help 4 HD Live! Featuring Our Odyssey

Help 4 HD Live! is the first international radio program ever created for the Huntington's disease community. In this episode, Seth discusses Our Odyssey and how it all started.

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Two Disabled Dudes Podcast

"There's more to life than circumstance."


Kyle Bryant & Sean Baumstark speak life into living beyond our circumstances with authenticity & humor. They are both affected by a rare disease called Friedreich's Ataxia (FA), which significantly impacts their balance and coordination. 

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Been There, Done That. Open Heart.

This podcast is about MarlaJan Wexler, a registered nurse, who supports young people with stories similar to hers. She discusses how she transitioned into adulthood and the challenges she faced during that journey.