Related Sites and Resources

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Sick Chicks

Sick Chicks is a group of young women dedicated to uniting and empowering other women with illnesses and disabilities. 

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Young Adult Representatives of RDLA (YARR)

The Young Adult Representatives of Rare Disease Legislative Advocates (RDLA) falls under the EveryLife Foundation for Rare Diseases and is geared towards 16-30 year olds.  YARR helps instill confidence in the next generation of rare disease advocates by empowering them to play an active role in advocacy.

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Own Your Crohn's

Tina is a Crohn’s patient who has accumulated several autoimmune ailments over the years. She is an avid blogger and advocate for chronic illnesses, disabilities and life-saving ostomy surgery. The purpose of the blog is to realize that we can lead full and happy lives while living within the constraints of diseases and disabilities. 

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Young Adults With Chronic Illness: The Forgotten Ones

Callum is a young adult with a chronic illness. They are rarely taken seriously. So they looked for their own community where they could be seen and heard.