The Young Adult Representatives of Rare Disease Legislative Advocates (RDLA) falls under the EveryLife Foundation for Rare Diseases and is geared towards 16-30 year olds. YARR helps instill confidence in the next generation of rare disease advocates by empowering them to play an active role in advocacy.
Tina is a Crohn’s patient who has accumulated several autoimmune ailments over the years. She is an avid blogger and advocate for chronic illnesses, disabilities and life-saving ostomy surgery. The purpose of the blog is to realize that we can lead full and happy lives while living within the constraints of diseases and disabilities.
Callum is a young adult with a chronic illness. They are rarely taken seriously. So they looked for their own community where they could be seen and heard.