Related Sites and Resources


Sick Chicks

Sick Chicks is a group of young women dedicated to uniting and empowering other women with illnesses and disabilities. 


Young Adult Representatives of RDLA (YARR)

The Young Adult Representatives of Rare Disease Legislative Advocates (RDLA) falls under the EveryLife Foundation for Rare Diseases and is geared towards 16-30 year olds.  YARR helps instill confidence in the next generation of rare disease advocates by empowering them to play an active role in advocacy.


Own Your Crohn's

Tina is a Crohn’s patient who has accumulated several autoimmune ailments over the years. She is an avid blogger and advocate for chronic illnesses, disabilities and life-saving ostomy surgery. The purpose of the blog is to realize that we can lead full and happy lives while living within the constraints of diseases and disabilities. 


Young Adults With Chronic Illness: The Forgotten Ones

Callum is a young adult with a chronic illness. They are rarely taken seriously. So they looked for their own community where they could be seen and heard.