The Young Adult Representatives of Rare Disease Legislative Advocates (RDLA) are a highly motivated group of 16-30 year olds from the rare disease community. The main purpose of YARR is to instill confidence in the next generation of rare disease advocates.
“It was so special to connect with extraordinary humans, living their extraordinary lives with extraordinary obstacles. How amazing it is to meet people who just get it. I’m honored to be a part of Our Odyssey’s growing family.” – Briana
“Our Odyssey is the extra support I didn’t know I was missing. Seth and Kristina’s passion for helping unite young people and make them feel less alone shines through fiercely. You come to a meeting a hesitant stranger and in two hours you leave as a part of a family. I can’t say enough about the positivity that has resulted in my personal journey through this organization!” – Gabby
"Most of the people that we know of who have the same condition as I do are all younger, so I can’t really relate to them. It is nice meeting with people my age, who have other diseases, and being able to share our experiences." – Lilly Grossman