Empowering young adults impacted by chronic & rare conditions

Young Adult Representatives of RDLA (YARR)

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Who are the Young Adult Reps of RDLA?

The Young Adult Representatives of Rare Disease Legislative Advocates (RDLA) are a highly motivated group of 16-30 year olds from the rare disease community.  The main purpose of YARR is to instill confidence in the next generation of rare disease advocates.  

Rockstar Testimonials

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“It was so special to connect with extraordinary humans, living their extraordinary lives with extraordinary obstacles. How amazing it is to meet people who just get it. I’m honored to be a part of Our Odyssey’s growing family.” – Briana 


“Our Odyssey is the extra support I didn’t know I was missing. Seth and Kristina’s passion for helping unite young people and make them feel less alone shines through fiercely. You come to a meeting a hesitant stranger and in two hours you leave as a part of a family. I can’t say enough about the positivity that has resulted in my personal journey through this organization!” – Gabby 


"Most of the people that we know of who have the same condition as I do are all younger, so I can’t really relate to them. It is nice meeting with people my age, who have other diseases, and being able to share our experiences." – Lilly Grossman


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