Our Odyssey Blog

Spotlights, News and Updates

Anthony DeVergillo Anthony DeVergillo

Game On For Inclusion with Overjoyed!

Our Odyssey, a nonprofit organization dedicated to providing services and connections for young adults living with rare diseases, is thrilled to announce the release of the Overjoyed Accessible Controller. This imaginative idea features a gaming controller to enable inclusion for individuals facing physical challenges, particularly those with rare or chronic conditions.

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Anthony DeVergillo Anthony DeVergillo

The Importance of Self Advocacy for Young Adults with Chronic Conditions

As a young adult living with a chronic disease, I’ve learned that developing the ability to speak up for my needs in the medical setting is an invaluable skill. Whether preparing for the next visit to the doctor or getting ready to begin a new treatment regimen, self advocacy plays a crucial role.

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Our Odyssey Our Odyssey

Apply for the Young Adult Programming Advisory Council

**Application Deadline: October 7th, 2022 11:59 p.m. ET** Application Form: https://forms.gle/nFm31F1CfuBTzajH9

Share your voice and ideas on directions for Our Odyssey’s future programs and services: Apply to be a member of the Young Adult Programming Advisory Council!

The Council

Our Odyssey is starting a new venture, and we are looking for community members to apply to be a part of the Young Adult Programming Advisory Council!

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Our Odyssey Our Odyssey

Employment Opportunity at Our Odyssey

Our Odyssey is seeking a Moderator for “Virtual Meet-ups.” These online (zoom) meetings are a space for young adults to connect, learn, and build a network of social and emotional support with people who simply get it. These Meet-ups provide a reminder that no young adult should feel isolated and that we are all in this together.

Each Virtual Meet-up lasts an hour and is scheduled during “non business hours.” Currently there are two Virtual Meet-ups scheduled per month.

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Anthony DeVergillo Anthony DeVergillo

May 2022: What’s New At Our Odyssey

To help ensure a smooth transition, the Our Odyssey Board of Directors has hired an Interim Executive Director. With a Certification in Nonprofit Interim Executive Director management, Susannah Erler comes to Our Odyssey with a history of leading nonprofit organizations during executive transitions.

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Anthony DeVergillo Anthony DeVergillo

Stress Relief for the Holidays

ID: Graphic titled “Stress Relief for the Holidays” in the centre in black text on a light gold background. Subtitled “Tips for Coping with Marcelle from Chronically Surviving below the title, also in black text. The background is gold with white snowflakes scattered in different shapes and sizes.

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Anthony DeVergillo Anthony DeVergillo

You are Always Worthy

Content/Trigger Warning: Talk of talk of death, mental health

A selfie of Joey, a white young man with short dark hair and a goatee, smiling at the camera. He is standing in front of a rose gold background, wearing a light blue hoodie and backward light pink hat.

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Anthony DeVergillo Anthony DeVergillo

POP! for Medical PTSD

Content/Trigger Warning: Talk of Trauma, PTSD, and Medical Trauma

A young white woman has short dark red hair with bangs and long feather earrings. She is laughing and, with squinting eyes, looking away from the camera.

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